This year's FTD Awareness Week campaign aims to raise awareness of the presenting symptoms of FTD and to contrast the disease to other forms of dementia, particularly AD (Alzheimer's Disease). We want to raise awareness of particular issues associated with FTD, for example, the younger age of onset, the greater carer burden, and the impact for families when FTD is transmitted genetically.
We are asking people living with FTD or at risk of FTD, people caring for someone with FTD, professionals diagnosing or researching the condition, advocates, and anyone else whose life has been touched by FTD to participate in the 2025 FTD Awareness Week campaign.ALLFTD is the largest multi-center research study in North America focused on FTD. The study brings together participants with both familial and sporadic (non-genetic) forms of FTD, along with “at-risk” family members, even those without symptoms.
Visualize: Help raise awareness by changing your profile picture on social media. Below you can find the profile image to use as well as tips on how to change your profile picture.
Follow: On each day of Awareness week there will be prompts provided by World FTD United which you can share on your social media accounts.
Engage: Share, like, repost the prompts from world FTD United on your favorite social platform. Comment with your own story or translate for your followers.
Here's what you can do to share our message:
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