Families fighting for a cure
We envision a future free of MAPT FTD

News, Media and Events

Media
News
UPCOMING

MAPT FTD family featured in the NYT: The Vanishing Family

A founding family of Cure MAPT FTD was featured in an article by journalist and New York Times-bestselling author, Robert Kolker.

Published:
Event date:
Thursday, July 20, 2023
November 20, 2025

Listen to our stories

More MAPT Stories

Linde's Story
Ansel's Story
Tanya's Story
Read More
If you are a Cure MAPT FTD member or have been spreading awareness about MAPT FTD, we want to feature you here!
We want to share your story! Fill out our form to share your story. Anonymous submissions are accepted.

Resources we offer

Support Resources

Are you a family with MAPT?

We offer educational resources, explain options for genetic testing, support group options, and information on FTD resources around the world.

Research Resources

Are you a FTD reseacher?

We want YOU to study MAPT FTD! We seek to foster collaboration, share breakthroughs, and accelerate discoveries that will lead to treatments, and ultimately a cure, for MAPT FTD.

A heartfelt thanks to our sponsors

Logo for the company AlectorEveryLife Foundation LogoLogo from The Bluefield ProjectLogo for Rare Village

We want to hear from you!

Are you interested in genetic testing? MAPT trials? Support and resources for FTD? Contact us and we'll get back to you quickly.  

hello@curemaptftd.org
Contact Us

Want to hear from us?

We're on the front lines fighting MAPT FTD. Want to keep up-to-date with what's going on in the efforts find a cure? Subscribe to our monthly newsletter to receive updates directly to your inbox!