Families Fighting for a Cure
We Envision a Future Free of MAPT FTD

News, Media and Events

Media
UPCOMING
Illustration of a family for The Vanishing Family

New Scientist: The Vanishing Family

New Scientist reviews Robert Kolker’s The Vanishing Family, a story of a family living with an inherited form of frontotemporal dementia.

Published:
Event date:
Wednesday, September 23, 2026
September 25, 2026
Event
Announcements
UPCOMING

The Vanishing Family Book Tour

Join Robert Kolker on tour for The Vanishing Family, September 28–October 12, 2026. Explore the full tour schedule and find a stop near you.

Published:
Event date:
Thursday, September 10, 2026
September 10, 2026
Announcements
UPCOMING

Genetic FTD: Fighting for a Future

Cure MAPT FTD member Linde Jacobs spoke at the UCSF Memory and Aging Center Lecture Series in a discussion on genetic FTD.

Published:
Event date:
March 13, 2026
Nov 17, 2024 7:00 PM

Read MAPT Stories

Bradford's Story
Annika's Story
Linde's Story

Resources

For families

Are you a family with MAPT?

Educational resources, options for genetic testing, support groups, and FTD organizations around the world.

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For researchers

Are you an FTD researcher?

We want YOU to study MAPT FTD! Find data, biospecimens, funding and collaborators to accelerate the path to a cure.

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For clinicians

Are you a healthcare professional?

Get our free FTD Clinician Toolkit: reference guides to help you recognize FTD sooner. Take a 2-minute survey to get access.

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Learn About Our FDA Listening Session

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