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Preview of the When a Family Says This, Think FTD guide

Tools to help you recognize FTD sooner

Free clinical reference guides for primary care, emergency medicine and mental health providers.

Get the clinician toolkit

A pilot program for frontline clinicians

Educational and clinical reference resources

The signs and symptoms of FTD can be challenging to recognize – not only for family members and loved ones, but for health and medical professionals as well. These difficulties often lead to misdiagnoses with other neurodegenerative or psychiatric conditions, or to a delayed diagnosis with FTD overall.

To support improved understanding and identification of FTD, we have created tools and guides with comprehensive information about, and recommendations for assisting, those who may be affected by the disease. They are designed for primary care clinicians, emergency medicine professionals, and mental health practitioners.

About this pilot program

The toolkit is being shared through a pilot program, funded by the Kissick Family Foundation, to increase awareness of FTD and support frontline healthcare professionals in recognizing and responding to the condition. This first phase focuses on outreach to healthcare professionals in Florida and Georgia, but the toolkit is free for all frontline health professionals and members of the general public.

Before downloading, we ask you to complete a brief, 2-minute survey. Your answers help us understand who is using the toolkit and what clinicians need to support their practice, and will shape how we improve and expand the program.

What’s in the toolkit

  • FTD 101 for Frontline Health ProfessionalsThe complete 42-page toolkit, with every guide below included.
  • Rapid Decision TreeSpot uncharacteristic changes and know when to refer.
  • When a Family Says This… Think FTDTurn caregiver comments into recognizable symptoms.
  • Know the Red FlagsSigns across the full FTD spectrum and common misdiagnoses.
  • FTD vs Other DiagnosesTell FTD apart from depression, bipolar disorder, Alzheimer’s and more.
  • Symptom Comparison ChartInitial changes in FTD, Alzheimer’s, psychotic disorders and depression.
  • bvFTD Recognition & Referral PathwayA five-layer path from first complaint to diagnosis.

Free to download. Complete the brief survey and you’ll go straight to the full toolkit and all six guides.

Take the 2-minute survey

Answer a few quick tap-to-answer questions, then you’ll go straight to the toolkit.

  • Under 2 minutesTap-to-answer questions about you, your practice and what you already know about FTD.
  • Private by designResults are reported only in aggregate and never identify you or your practice.
  • Instant accessWhen you finish, you’ll go straight to the full toolkit and all six guides.
Start the survey →

Your name, email and individual responses will never be shared with or sold to third parties. See our Privacy Policy.

How much do you know about frontotemporal dementia (FTD)? *
Do you see patients in your practice who may be showing signs of dementia? *
If yes, do you refer those patients to dementia clinics or specialists in neurodegenerative disorders? *
Do you currently have materials in your practice to help when screening patients for dementia? *

By requesting access, you agree to receive occasional emails from Cure MAPT FTD about clinician resources. You can unsubscribe at any time. See our Privacy Policy.

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