We are a global team of families who have been affected by MAPT FTD, in most cases for many generations. We are driven to ensure that future generations will be free from the challenges and devastating loss that we have endured. We have members in Canada, England, France, New Zealand, and the US.

Scientific Advisory Board

Meet our board of top scientists and cutting-edge leaders in frontotemporal dementia (FTD) research.

Carmela Tartaglia, MD

Associate Professor, University of Toronto

📍
Toronto, Canada

Juliana Acosta Uribe, MD, PhD

Assistant Researcher, UCSB

📍
Santa Barbara, California

Jonathan Rohrer, MBBS, MRCP, PhD, FRCP

Professor of Neurology, UCL

📍
London, England

Adam Boxer, MD, PhD

Neurologist, UCSF

📍
San Francisco, CA

Amy Rommel, PhD

Rainwater Charitable Foundation

📍
Fort Worth, TX

Bradley Boeve, MD

Neurologist, The Mayo Clinic

📍
Rochester, MN

Claire Clelland, MD, PhD, MPhil

Assistant Professor of Neurology, UCSF

📍
San Francisco, CA

Kenneth Kosik, MD

Neurologist, Biologist, UCSB

📍
Santa Barbara, CA

Sally Temple, PhD

Scientific Director, Co-Founder, NSCI

📍
New York, NY

Executive Team

Meet our dedicated team of leaders in frontotemporal degeneration (FTD) advocacy.

Marian Grems

Community Engagement

📍
Maumee, OH

Linde Jacobs

Research

📍
River Falls, WI

Ansel Dow

Community Outreach

📍
Durham, NC

Barbara Dawson

Community Engagement

📍
Toronto, ON

Amanda Dawson

Brand & Communications

📍
Portland, OR

Andrea Furgiuele

Brand & Communications

📍
Toronto, ON

Annika Roll

Brand & Communications

📍
White Plains, NY

Tanya Steel

Brand & Communications

📍
Sarasota, FL