About

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We are a global team of families who have been affected by MAPT FTD, in most cases for many generations. We are driven to ensure that future generations will be free from the challenges and devastating loss that we have endured. We have members in Canada, England, France, New Zealand, and the US.

Scientific Advisory Board

Meet our board of top scientists and cutting-edge leaders in frontotemporal dementia (FTD) research.

Dr. Adam Boxer

Neurologist, UCSF

📍
San Francisco, CA

Amy Rommel

PhD, Rainwater Charitable Foundation

📍
Fort Worth, TX

Dr. Bradley Boeve

Neurologist, The Mayo Clinic

📍
Rochester, MN

Dr. Claire Clelland

PhD, Rainwater Charitable Foundation

📍
San Francisco, CA

Dr. Kenneth Kosik

Neurologist, Biologist, UCSB

📍
Santa Barbara, CA

Sally Temple

PhD, Neural Stem Cell Institute

📍
New York, NY

Dr. Jonathan Rohrer

Professor of Neurology

📍
London, England

Executive Team

Meet our dedicated team of leaders in frontotemporal degeneration (FTD) advocacy.

Linde Jacobs

Research

📍
River Falls, WI

Barbara Frommell

Fundraising

📍
Denver, CO

Ansel Dow

Community Outreach

📍
Durham, NC

Barbara Dawson

Community Engagement

📍
Toronto, ON

Amanda Dawson

Brand & Communications

📍
Portland, OR

Andrea Furgiuele

Brand & Communications

📍
Toronto, ON

Annika Roll

Brand & Communications

📍
White Plains, NY

Marian Grems

Community Engagement

📍
Maumee, OH

Tanya Steel

Brand & Communications

📍
Sarasota, FL