Genetic testing is a difficult decision many MAPT families face. Although this can feel heavy and lonely, you are not alone in this. We have team members around the world who have been through this process, who have received both negative and positive results. We also have team members who have chosen not to move forward with genetic testing for now. Here are a few resources for MAPT families seeking genetic testing support. You can also send us an email at hello@curemaptftd.org for more information.

AFTD: Genetic counselors with expertise in FTD directory

Find a genetic counselor in your state (US only)

AFTD: No cost genetic testing

Find no-cost genetic testing (US only)

AFTD: Why Learn my Genetic Status?

AFTD: FTD and Genetics Overview

Learn about the differences between Genetic, Familial and Sporadic FTD

AFTD Webinar:

Genetic FTD: To Test or Not to Test