Families fighting for a cure
We envision a future free of MAPT FTD

News, Media and Events

Announcements
UPCOMING

How to host a meetup for MAPT

¡Sé creativo! Planifica un evento en torno a algo que te encante hacer: cocinar, hacer karaoke, jugar a los bolos, jugar al golf, hacer manualidades, nadar, esquiar, pescar, lanzar hachas, curiosidades, etc.

Published:
Event date:
Thursday, November 14, 2024
November 20, 2025
Announcements
UPCOMING

Genetic FTD: Fighting for a Future

Cure MAPT FTD member Linde Jacobs will speak at the UCSF Memory and Aging Center Lecture Series in a discussion on genetic FTD. Attend in person at the Helen Diller Family Cancer Research Auditorium (HD-160), or click the link below to register on Zoom.

Published:
Event date:
November 20, 2025
Nov 17, 2024 7:00 PM
Media
News
UPCOMING

MAPT FTD family featured in the NYT: The Vanishing Family

A founding family of Cure MAPT FTD was featured in an article by journalist and New York Times-bestselling author, Robert Kolker.

Published:
Event date:
Thursday, July 20, 2023
November 20, 2025

Listen to our stories

Nuestras historias

La historia de Linde
La historia de Ansel
La historia de Tanya
Leer más
If you are a Cure MAPT FTD member or have been spreading awareness about MAPT FTD, we want to feature you here!
We want to share your story! Fill out our form to share your story. Anonymous submissions are accepted.

Resources we offer

Support Resources

Are you a family with MAPT?

We offer educational resources, explain options for genetic testing, support group options, and information on FTD resources around the world.

Research Resources

Are you a FTD reseacher?

We want YOU to study MAPT FTD! We seek to foster collaboration, share breakthroughs, and accelerate discoveries that will lead to treatments, and ultimately a cure, for MAPT FTD.

Un sincero agradecimiento a nuestros patrocinadores

Logo for the company AlectorEveryLife Foundation LogoLogo from The Bluefield ProjectLogo for Rare Village

¡Queremos saber de ti!

¿Le interesan las pruebas genéticas? ¿Ensayos con MAPT? ¿Apoyo y recursos para la FTD? Póngase en contacto con nosotros y nos pondremos en contacto con usted lo antes posible.

hello@curemaptftd.org
Contact Us

¿Quieres saber de nosotros?

Estamos en primera línea luchando contra MAPT FTD. ¿Quieres estar al día de lo que sucede en los esfuerzos por encontrar una cura? ¡Suscríbase a nuestro boletín mensual para recibir actualizaciones directamente en su bandeja de entrada!